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The I.C.U. is not F.U.N.

5/30/2015

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Do you remember the cacophony of vuvuzelas from the 2010 World Cup in South Africa? And the pen-tapping coworker or classmate who doesn’t realize that they lack the rhythmic talent of Van Halen? How about dial-up modems? Well imagine taking those sounds, crossing all of them together, placing them in a small room, and being told to sleep there. Welcome to the ICU.

Here one can enjoy a lavish banquet of flavored ice cups, clear tepid broth with the slightest essence of chicken, and your choice of kaleidoscopic jello cubes.

I don’t mean to be a grumbler, but the unending crinkle of the plastic blue suits, the hard cold seating options, and the lack of light in this place leaves me feeling like I’m caught in a black hole. Here, the metrics of time are not always in minutes, hours, or days, but in “soon,” “hopefully when the doctor calls us back,” “when Robert finishes his 3rd bottle of contrast,” and “I can’t answer that.” The best light sources have come from the 20 minutes we had yesterday evening with the babies as Trav was allowed to be wheeled out into the ICU waiting room to see them, and from this computer/iPad screen as you encourage and love on us. You guys are a gift. Whether you’re here with us in person or sending your love and prayers from afar, your supplications and prayerful requests have been our lifeblood. Look at what God does with dreadful things. He took a trip to the ER and turned it into 154+ different conversations with Him—many of them continuing today. That’s good stuff.

Yesterday morning, they strapped Trav up with the equipment needed to monitor the PillCam. If you thought your multi-vitamins were huge, you should see this thing! Once they activated the pill, a bright light began flashing rapidly. As it went down the hatch we were able to see images of Trav’s esophagus, the valve leading to the stomach, and finally, kerplunk! into the stomach juices. He remained on a clear liquid diet and lived vicariously through friends and family as he asked each one where they were going to eat dinner.

This morning, Trav was taken in for a CT scan that focused on the small bowel. Thankfully, the scans did not show any tumors. His hemoglobin is dropping, which means he’s still bleeding and may require future blood transfusions. While doctors speculate many things, they still are not entirely sure of the cause of bleeding. They noticed bowel wall thickening which can be caused by a number of things, also something of which they are unsure.

My initial reaction to their unknowing is, “Idiots!” But if you stop and consider the past 3 years, what have they known? They know Travis has cancer. They know, based on research and statistics, he isn’t supposed to be here. They know that his case is inexplicable. They know that they don’t know. It’s not because they’re not highly qualified or highly intelligent physicians. We have been privileged to have some of the best doctors. But like us, they aren’t driving.

Trav is now on a full liquids diet (Cream of Potato Soup, here we come!) He is resting and visiting. The dropping hemoglobin I mentioned earlier needs to rise. When kneeling tonight, could you remember us again? Specifically, for Trav’s bleeding to stop, a transfer to MD Anderson, and treatment options to open.

Unfortunately, we are in the ICU and have to be quiet. Otherwise we would’ve seen which of you brave souls are willing to take us on in a board game. Once we get back home, we’ll open the invitation. We love you.

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What a day, what a day

5/29/2015

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Today sucked. Yep. Sucked. After starting this post three different times and three different ways, this is the most accurate and honest depiction of the past 24-36 hours. Allow me to set the stage.

Trav and I made our way to the ER last night around 9:00. There was an extensive amount of blood in his stool. We were admitted and stayed the night at Memorial Hermann (@ 99 and I-10--come see us!). We saw three doctors by 7:30 this morning and learned that Trav would soon begin prep for a colonoscopy and endoscopy. For those of you privy to these two procedures, you know what a bitter experience bowel prep can be. The goal: to determine the source of bleeding in Trav's GI tract. The gastroenterologist who performed the procedures was the same one who performed them back in 2012 two days before we learned there was a large mass on Trav's liver. He didn't remember Travis (which chapped my hide because I remembered him. And his poor bedside manner. And his nonexistent sense of humor). He seemed intrigued with Trav's history, as most doctors are. He asked about the cause of Trav's liver cancer. He asked how long ago he was diagnosed.  

The doctor asked if Trav was currently being treated, and the more questions he asked, the more answers I found. He couldn't explain anything about Trav's condition. I wasn't hanging on his every word as I once had been. This was someone who knew everything about the GI tract, but nothing about Travis. He didn't know that doctors argued whether to treat him because they believed he had 3-6 months to live. He didn't know that Travis had been turned down twice for fertility treatments, yet is a father of 18 month old (TODAY!) twins. He didn't know that Travis doesn't believe in false hope or luck or chance or any other such nonsense. After the procedure, this physician explained that there is bleeding in the small intestine and that Trav will need to be admitted to ICU. The doctor made sure he was donning his unapproachably cold veneer as he explained his findings. They performed a bleeding scan, and at 2:17 am, we are still awaiting a blood transfusion. In the morning Trav will swallow a PillCam, which is exactly what it sounds like. The purpose of this device is to travel through the small intestine to help doctor's locate and gather information regarding the source of Trav's bleeding. Trav hasn't had anything solid to eat since 2 am Thursday morning. He is tired and irritable and challenging the nurses on everything. He's arguing with staff. When asked to leave the ICU room, I argued with staff. We are tired, and we haven't seen our kids since Wednesday night.

While we waited hours for scans and rooms to be ready, I cracked. I made my way to the bathroom and lost it. There are not very many places or instances that are more humbling than hitting your knees in a post-op recovery bathroom. I realized that we had arrived at that place. We are once again at the Impossible Place, where doctor's don't have answers and treatment options are whittled down. Where the doubts and the "whys?" begin to peek their heads, and the number of pitiful looks increase.

While we cannot navigate the Impossible Place, this is where God's best handiwork can be found. The Impossible Place isn't made for us. It's made for Him. It's the place where we can't take the credit for the good in the outcome. It's the place where God gets His glory. So be it a miraculous healing, or the spurred curiosity of unbelievers, God is working something big. The impossible place will oftentimes suck and may make no sense to you, but work is being done. I don't know where you are today, but I do know that God is working all things for the good of those who love Him. Trav loves Him. I love Him. We cannot control or drive in our current impossible place. It only makes sense to relinquish control to the Great Physician who does far more than heal disease.

I am thankful for your prayers. Please continue to remember Travis, me, our kids, our parents, and the doctors in them. Thank you for being so good to us. Have we told you lately that we love you--Rod Stewart style? We do. So very much.

2 Timothy 1:7--"...for God gave us a spirit not of fear but of power and love and self-control."

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Three years later...

3/1/2015

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We're still here.   Fight on, Trav.
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    In this photo...

    we were at Venice Beach.  In an attempt to simply dip his toes in the Pacific, Trav got more than he bargained for.

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